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Well guys just an update on my Idiopathic Pulmonary Fibrosis. I went to the Pulmonologist yesterday for my 6 month breathing test. The Dr. put me on oxygen for sleeping and if I am exerting myself, so I will be receiving that big R2 unit for my home and a small portable concentrator for stressful activity. I knew this time was coming so it’s not a surprise or shock. My numbers aren’t bad enough to be placed on a transplant list yet but he surmises that I may need to take a trip to Seattle sometime next year for that determination. What’s great is my boss didn’t even bat an eye at the news and he said he could help me with my occasional heavy work if needed.
The medication I was on was causing some really weird side effects so he is also prescribing me the other drug which is supposed to slow the progression. Although this drug requires a liver function test every couple of weeks at the start. I guess it messes with your blood.
So this is an update for those who may be curious of how I’m doing. For a disease that should have taken me out a few years ago, I’m doing great!
Steve
Building a kit from your stash is like cutting a head off a Hydra, two more take it's place.
http://www.spamodeler.com/forum/
That's good to hear Steve. Keep fighting buddy and I'll keep praying for you and your family.
-Andy
I think that great positive attitude of yours will help as much as the docs, Steve.
Keep it up.
Greg I think that great positive attitude of yours will help as much as the docs, Steve. Keep it up.
Very true, a good attitude helps a lot! My prayers for you and your family Steve.
"I dream in fire but work in clay." -Arthur Machen
Steve, my prayers for you and your family. I wish you all the best.
Bruce
On the bench: 1/48 Eduard MiG-21MF
1/35 Takom Merkava Mk.I
That is good news to hear Steve and take it one day at a time buddy. Wishing you all the best.
Too many models to build, not enough time in a lifetime!!
Good news indeed. Stay strong.
Glad to hear that you are hanging in there Steve.
It's great to have a boss that's on your side too. When my kidneys were failing, the company I worked for still paid me full pay even though I had to take a 1/2 day off 2 days a week to go to dialysis. When I got the transplant, they still paid me full pay while I was recovering. It sure took a lot of the stress away.
You're still in our thoughts and prayers.
Jim
Main WIP:
On the Bench: Artesania Latina (aka) Artists in the Latrine 1/75 Bluenose II
I keep hitting "escape", but I'm still here.
Good to hear the news Steve. Sending one up for you.
Forum | Modelers Social Club Forum (proboards.com)
Great positive attitude Steve! Hopefully the new meds will help to ease the side effects. Thanks for the update!
On the Bench: Lots of unfinished projects!
FSM Brother Steve -
Really great to read that you're doing so well and that you have plenty of support. Your upbeat attitude will serve you well, the oxygen will go a long way toward maintaining the feeling of wellness.
Please tell your boss I think he/she is a really good person, for accomodating your needs during this. Best of everything, Steve.
Patrick
My best wishes go with you, and good to hear that you are doing as well as you are.
My website: http://waihobbies.wkhc.net
My prayers go out to you and your family. It is your will, fantastic attitude, and the great respect and love you have for others that not only help you beat the odds but brings such kind humanity around your soul.
What great love. It is because of this love you attract strength and happiness from family, friends, co-workers, health care providers, and even your boss. I'm always here for you as you've been for me!
Toshi
On The Bench: Revell 1/48 B-25 Mitchell
Married to the most caring, loving, understanding, and beautiful wife in the world. Mrs. Toshi
Good news indeed,take care of yourself.
"le plaisir delicieux et toujours nouveau d'une occupation inutile"
One of the nice things about these forums is the cool people you get to meet. Steve I could only dream of having your courage . I don't know of anything I can add except that the world needs more people like you . God bless you and keep you in His care .
"Can you fly this plane and land it?...Surely you can't be serious....I am serious, and don't call me Shirley"
Hey !
Can you say BIG BRASS ONES ?? Well I think you have em . God bless and keep on keepin on . Not to fear . Our Museum Board president has been on oxygen at this telling for quite some time .We always have to remind him to put the cannula back in his nose !
If he takes it off , he gets real mentally fuzzy . He is a good boy and wears it when he messes with his model trains at home though . T.B.
Keep a positive mindset and hang in there!
F is for FIRE, That burns down the whole town!
U is for URANIUM... BOMBS!
N is for NO SURVIVORS...
- Plankton
LSM
That's encouranging Steve. Stay strong and positive.
Eric
Your upbeat attitude is awesome! Keep it up!
“Ya ya ya, unicorn papoi!”
Hi Steve,
I have been away from the forum for awhile and have been thinking about you and praying you have been better. This is good news. You are such a valuable member around here who give so much in talent and support.
Scott
Hello Steve - I wish you the very best and take every day as it comes. One at a time! I'm 10 years out now with my liver transplant and every day is a special one! Cheers my friend from a newbie in town.
Robert O
Steve, you are still at the top of the prayer list. Glad you're doing well.
Fright, Congrats on your 10 year anniversary. On Nov. 28th I passed my 18 year anniversary with my kidney transplant. Sounds like we have a good bunch of fighters here. Maybe we can get together one day for a cold one. Ooopps! Can't have one. It would have to be a nice hot cup of coffee or tea. Well, maybe one for the special occasion wouldn't hurt.
Steve, I was lucky to only live 1-1/2 hours from Hershey Medical Center but I had to drive up and back often for check-ups until they had a kidney for me. When they got one, a cadaver, I had to get there ASAP. After the operation, I only stayed for 4 or 5 days and then came home. Had to go back every couple of days for the first few months for tests and then it was once a week for 6 months, then once every 2 weeks for 6 mo., then once a month for 2 years. Now I only have to go back once a year but I still have to get bloodwork at our family physicians office every 3 months and he sends a copy to Hershey.
I guess they want you near for at least the first 3 months before and after to keep a close check on you. If you have a family doctor that can do some of the tests they need, send the results to them and keep in touch with them like I did, you might be able to cut the time down. Or if a local Hospital will run the tests for you. Doesn't hurt to ask.
Hope that this helps.
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