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An update on Mrs. Toshi’s condition 8/25/18 (A diary of a very extreme mental test)

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  • Member since
    March, 2015
  • From: Streetsboro, Ohio
An update on Mrs. Toshi’s condition 8/25/18 (A diary of a very extreme mental test)
Posted by Toshi on Thursday, October 25, 2018 10:13 AM

To my fellow forum members,

         I’ve been absent for a couple of weeks.  Please except my apologie.  Mrs. Toshi and I went to get her PET/MRI Scan.  It took this long for the Toshi’s as when we arrived to the first appointment, they scheduled just a regular MRI Scan.  So we drove 40 miles to get to Cleveland to only find out that we had to come back home.

The second time when we went, they did schedule a PET/MRI.  One small problem, nobody had it approved by her Medicaid insurance.  lol!  And of course, here we go AGAIN, turn around to drive home.  WOW!!!  How many times can you F*$# up?  All the while, Mrs. Toshi’s condition worsens, fatigue, extreme sleepyness, short term memory issues, and the inability to walk at times as she’s a fall hazard.

The third time, we went to actually get the services Mrs. Toshi needed to be completed.  It took a very long, long, time.  I sat in the waiting room watching reruns of “Friends”!  lol!  That was last week Thursday it took 7 hours!!!  On this Wednesday, we went to get the results.  

Her return of the tumor mass, is gone.  Steroids shrunk the tumor.  You see, the tumor started to grow again because it was proton therapy induced.  And she is done taking anymore proton therapy session anymore.  YAY!!!  Unfortunately she has extreme swelling in her brain.  She will have to get another surgery (This is surgery number 3) it is a operation that will take 90 minutes and she’ll be in University Hospital main campus in Cleveland for 4-5 days.  A shunt will be placed under her skin behind her ear and enter the skull behind the ear and from there it goes down to drain the fluids.  Another entry way they also use is to drill a whole at the area of the excess fluid and add another shunt.  A small pump will be added behind Mrs. Toshi’s ear under the skin.  Now we have to watch out for infection and or that the shunt gets blocked.  Oh Boy, here we go again!!!  lol!

Thank you FSM Forum Members, you’ve been like a second family to me. I don’t know what to say but except “Thank you so very much”!

Your friend, Toshi

On The Bench: Revell 1/48 B-25 Mitchell

 

Married to the most caring, loving, understanding, and beautiful wife in the world.  Mrs. Toshi

 

 

  • Member since
    April, 2003
  • From: USA
Posted by keavdog on Thursday, October 25, 2018 10:36 AM

Sorry to hear about all the delays.  That's terrible service.  I'm glad to hear you have a path forward and hoping for the best for you and yours.

Thanks,

John

  • Member since
    May, 2013
  • From: Indiana, USA
Posted by Greg on Thursday, October 25, 2018 10:43 AM

I know Mrs Toshi, you, and your family have been through a lot. That said, yet another surgury to make things right isn't the worse possible news.

Wishing all of you the very, very best.

-Greg

  • Member since
    March, 2015
  • From: Streetsboro, Ohio
Posted by Toshi on Thursday, October 25, 2018 10:51 AM

keavdog

Sorry to hear about all the delays.  That's terrible service.  I'm glad to hear you have a path forward and hoping for the best for you and yours.

 

Yes, thank you.  It’s about people dropping their responsibilities.  At least now I feel that we have a fantastic sense of direction.  Thank you again keavdog.

Your friend, Toshi

On The Bench: Revell 1/48 B-25 Mitchell

 

Married to the most caring, loving, understanding, and beautiful wife in the world.  Mrs. Toshi

 

 

  • Member since
    September, 2012
Posted by GMorrison on Thursday, October 25, 2018 10:57 AM

I wish you the best, Toshi. If I lived in Cleveland I'd gladly put you up, or at least give you a home base.

Hang in there, friend.

 

Bill

  • Member since
    March, 2015
  • From: Streetsboro, Ohio
Posted by Toshi on Thursday, October 25, 2018 10:58 AM

Greg

I know Mrs Toshi, you, and your family have been through a lot. That said, yet another surgury to make things right isn't the worse possible news.

Wishing all of you the very, very best.

 

Yes we have.  It’s been a whole year of stress!  The 3rd  surgery is a blessing and I feel this will be it.  Greg, I thank you from the bottom of my heart!

Your friend, Toshi

On The Bench: Revell 1/48 B-25 Mitchell

 

Married to the most caring, loving, understanding, and beautiful wife in the world.  Mrs. Toshi

 

 

  • Member since
    March, 2015
  • From: Streetsboro, Ohio
Posted by Toshi on Thursday, October 25, 2018 11:00 AM

GMorrison

I wish you the best, Toshi. If I lived in Cleveland I'd gladly put you up, or at least give you a home base.

Hang in there, friend.

 

Bill

 

GMorrison, all I can say is you have a heart of gold!  

Your friend, Toshi

On The Bench: Revell 1/48 B-25 Mitchell

 

Married to the most caring, loving, understanding, and beautiful wife in the world.  Mrs. Toshi

 

 

GAF
  • Member since
    June, 2012
  • From: Anniston, AL
Posted by GAF on Thursday, October 25, 2018 11:03 AM

Toshi,

Prayers for your wife and you.  Is the shunt a permanent thing, or will the swelling eventually go down and it can be removed?

Gary

  • Member since
    July, 2016
  • From: Malvern, PA
Posted by WillysMB on Thursday, October 25, 2018 11:11 AM

So sorry to hear about your wife's issues, but as has been said could be worse. Is the Cleveland Clinic not covered by your insurance?  They're one of the top hospitals in the country, on a par with Mayo and Marshfield.

  • Member since
    November, 2009
  • From: SW Virginia
Posted by Gamera on Thursday, October 25, 2018 11:30 AM

I don't know what to say- as usual you and the family are in my prayers Toshi. 

"I dream in fire but work in clay." -Arthur Machen

 

  • Member since
    March, 2015
  • From: Streetsboro, Ohio
Posted by Toshi on Thursday, October 25, 2018 11:44 AM

GAF

Toshi,

Prayers for your wife and you.  Is the shunt a permanent thing, or will the swelling eventually go down and it can be removed?

Gary

 

Thank you GAF!  The prayers have worked as the tumor went away. The shunt will be a permanent medical device.  In 8 to 10 years, it needs to be replaced. 

Your friend, Toshi

On The Bench: Revell 1/48 B-25 Mitchell

 

Married to the most caring, loving, understanding, and beautiful wife in the world.  Mrs. Toshi

 

 

  • Member since
    May, 2011
  • From: Honolulu, Hawaii
Posted by Real G on Thursday, October 25, 2018 11:45 AM

Toshi,

I am sorry to hear you and the missus had to go through all that!  It is good news that her tumor has decreased in size.  Keep your head up, and you know we are all rooting for both of you.

Ganbatte kudasai!

  • Member since
    March, 2015
  • From: Streetsboro, Ohio
Posted by Toshi on Thursday, October 25, 2018 11:49 AM

WillysMB

So sorry to hear about your wife's issues, but as has been said could be worse. Is the Cleveland Clinic not covered by your insurance?  They're one of the top hospitals in the country, on a par with Mayo and Marshfield.

 

Thank you for your concerns WillysMB!  Yes, Cleveland Clinic does except Medicaid.  The issue is the it was a human error, and they apologized profusely.  The person input it the wrong code as well as the Doctors got involved to speak to the insurance employee.   

 

Your friend, Toshi

On The Bench: Revell 1/48 B-25 Mitchell

 

Married to the most caring, loving, understanding, and beautiful wife in the world.  Mrs. Toshi

 

 

  • Member since
    March, 2015
  • From: Streetsboro, Ohio
Posted by Toshi on Thursday, October 25, 2018 11:53 AM

Gamera

I don't know what to say- as usual you and the family are in my prayers Toshi. 

 

Gamera, you’ve always been there for me, your prayers helped heal her tumor.  The rest is just some surgery and 4-5 days in the hospital.

Your friend, Toshi

On The Bench: Revell 1/48 B-25 Mitchell

 

Married to the most caring, loving, understanding, and beautiful wife in the world.  Mrs. Toshi

 

 

  • Member since
    March, 2015
  • From: Streetsboro, Ohio
Posted by Toshi on Thursday, October 25, 2018 11:58 AM

Real G

Toshi,

I am sorry to hear you and the missus had to go through all that!  It is good news that her tumor has decreased in size.  Keep your head up, and you know we are all rooting for both of you.

Ganbatte kudasai!

 

Thank you for your heart felt concerns.  It is very great news in that Mrs. Toshi’s tumor has shrunk.  Yes, we will be positive and move forward.

Your friend, Toshi

 

GANBATTE MASU

DOO MOO AIRIGATO

On The Bench: Revell 1/48 B-25 Mitchell

 

Married to the most caring, loving, understanding, and beautiful wife in the world.  Mrs. Toshi

 

 

  • Member since
    August, 2014
  • From: Willamette Valley, Oregon
Posted by goldhammer on Thursday, October 25, 2018 12:46 PM

I've been praying and hoping for good news....looks like you finally are getting some.  Best wishes for a rapid recovery on her part so your household can get back to normal.  You've been away from the bench too long dealing with this.  Get back to it as soon as you can, will help relieve the stresses.

  • Member since
    January, 2017
  • From: Great Southern Land
Posted by damouav on Thursday, October 25, 2018 1:05 PM

Wishing you both the very best for a speedy recover. I'm glad you have a close family and friends by your side to be your support during this time. Look forward to seeing great future builds come from the desk of Mr Toshi.

Take care.

In Progress
1/48 Hasegawa P51-D
1/48 Hobby Boss TBF-1C Avenger
Pending
1/48 Tamiya P47-D Bubbletop
1/48 Roden S.E.5a
1/48 Airfix Walrus
1/48 Hasegawa P38-L
  • Member since
    October, 2016
  • From: Somewhere in Ohio...
Posted by DasBeav on Thursday, October 25, 2018 1:29 PM

Great to hear some good news, Toshi. I've said it before, you and Mrs. Toshi got this. Hopefully, the family can relax and enjoy the holidays. You guys definitely deserve it.

 Sooner Born...Buckeye Bred.

 

  • Member since
    March, 2013
Posted by patrick206 on Thursday, October 25, 2018 1:56 PM

Toshi - When I saw the update intro about Mrs. Toshi my heart sank a bit, afraid that it was going to be sad news. I must say I feel greatly relieved, learning that this is still very treatable and with an encouraging path forward.

Mrs. Toshi has endured a lot of uncertainty in the past several months, now things have to look brighter for you both, with the ability to continue treatments for the future.

Please accept my sincere best wishes and hope, that Mrs. Toshi will find comfort and wellness very soon. I salute you for being the shoulder for her to lean on, giving her support and love as she goes through this time. Goodness knows she has been there for you following your TBI, she paid it forward in a major way, now you can return the love and care she deserves. That's a real honor.

All the best, Alan.

Patrick

 

  • Member since
    May, 2017
  • From: Denver, Colorado
Posted by MrStecks on Thursday, October 25, 2018 1:58 PM

Sorry Mrs. Toshi and you have had to go through so much, but I'm glad to hear the tumor is gone and you have found a direction to take to sort out the swelling.  I'm holding you and your family in my thoughts, and send my best wishes to you all.

Mark.


On the bench: Hasegawa 1/48 Nakajima E8N1 Type 95 (Dave)

In the queue: Airfix 1/48 Junkers Ju87B-1 Stuka

  • Member since
    April, 2015
Posted by Mopar Madness on Thursday, October 25, 2018 2:08 PM

The good news is, for every issue that has arisen, there seems to be a solution to fix it.  Thank goodness for that! As always, your dear wife is in our prayers. 

Chad

God, Family, Models...

At the plate: 1/48 GWH Fw 189 A-1 Nachtjager

On deck: 1/48 Bronco IF-17

In the hole: Who knows!  

  • Member since
    August, 2012
  • From: Parker City, IN.
Posted by Rambo on Thursday, October 25, 2018 2:35 PM
I'm sorry to hear about Mrs. Toshi I'll keep you in my prayers. As for the mix up at the hospital, my dads in the middle of his third fight with cancer and I can tell you its par for the course the doctor, insurance and the girls out at the hospital have no idea what the others are doing.

Clint

  • Member since
    July, 2013
Posted by modelmaker66 on Thursday, October 25, 2018 3:15 PM

As always my thoughts and prayers are for both of you. May healing come quickly and fully for Mrs T. You are a good man to be so loving and compassionate to her. A blessed marriage indeed!

  • Member since
    November, 2013
Posted by BrynnWryttur on Thursday, October 25, 2018 3:15 PM
I'm glad the tumor is gone! I'll be praying for her that the third surgery goes well. I've only been having gastrointestinal issue, nothing like a tumor, but I know what it's like to be given the run around. I'll be praying for you guys. By the way, I live 2 hrs from Cleveland in Jamestown, NY. Do you live anywhere near that area? I'm trying to find modeling clubs around here, but to no avail. I don't know if you'd happen to know of any?

Prohibeo Mediocritatis

Forbid Mediocrity

  • Member since
    November, 2008
  • From: Central Florida
Posted by plasticjunkie on Thursday, October 25, 2018 5:22 PM

Glad to hear the wife is doing better. This is very hard to see a loved one go through this but things are shaping up in your favor. 

Will pray for continued improvement.

 GIFMaker.org_jy_Ayj_O

 

 

Too many models to build, not enough time in a lifetime!!

  • Member since
    January, 2013
Posted by BlackSheepTwoOneFour on Thursday, October 25, 2018 5:25 PM

I've been folowing this since the first diagnosis. I'm relieved to hear things are getting better for the Mrs. Take care of her and yourself. Lord knows you both need this bit of good news.

  • Member since
    February, 2014
  • From: Michigan
Posted by silentbob33 on Thursday, October 25, 2018 5:45 PM
I'm glad to see this update Toshi, I was wondering about you the other day. I'm relieved to hear the tumor has shrunk, and that they have a clear path going forward. My family and I will keep you both in our prayers.

On my bench: 1/48 Academy F-5E Lightning

  • Member since
    June, 2018
Posted by ARDVARK003 on Thursday, October 25, 2018 7:25 PM
My prays are going out for you and Mrs.
  • Member since
    August, 2016
Posted by Keyda81 on Thursday, October 25, 2018 8:06 PM

I'm sorry that the two of you are going through all this.  I'm sure waiting to find out what was going to happen was the worst part.  Now at least you know the next steps, and things are looking up!  Best wishes to the both of you!

  • Member since
    July, 2012
  • From: Douglas AZ
Posted by littletimmy on Thursday, October 25, 2018 8:32 PM

My finger's are "crossed" that this time , will be the last time Mrs. Toshi has to go through this.

Karmic energy, and good thought's headed your way.

 Dont worry about the thumbprint, paint it Rust , and call it "Battle Damage".

  

 

    

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