Chronic Fatigue Syndrome and Modelling

Hang in there, SD. Merry Christmas to you and your family.

Also I have to be carefull. Like the boy who cried wolf too many times, if I turn into a nag it shuts people out. It's kind of a fine line.

Thank you so much for standing up with her. Please stick with her because she needs frends as close as possible. Please don't feel that way, you are family to her. Family is not just who you are related to by blood. 

All i am going to say about governmant, hmm, hmm, is that they can be difficult. To put it mildly. 

I have the health side pretty bad like you say. But like I said my family is there for me which I am so greatful for.

Yes I am trying to the best I can.

Thank you so much for understanding and careing.

Hey man.

Been pretty tired this last few weeks, posting a bit on and off. Other than that not doing much. Not enough energy to do even the most basic house work. I manage to make my meals and put around a bit, try to do a few different things each day, but that is all. Also suffer from bad brain fog.

Wow. I've only had it for 4 years going on 5. The way things are looking I will probably be like her in 20 years. Even then it's hard to imagine what it has been like for her and anyone who's had it for a long time. Getting there slowly, but feel like it already. Hehe.

Luckily my family is very understanding and try to do the best they can for me. Even though they don't know what it is like to live with it they try to be as kind as possible. They totally believe that it is all real and do as much as they can. But there is not a lot they can do. It is pretty much all up to me to find a way through this. I really feel for her and all the people I know that have the same problems with family. Yes, people can be pretty mean at times. All they care is about themselves. I'm not saying at all everybody is like this, but you can get it at times.

Hey SD--

I will let my friend know about you. I think this will encourage her some.  She has suffered with the illness going on 25 years.

Reading your message makes me want to cry because your scenario is like reading her story.   

Like you--she has numerous other health ailments.

Like you--her family and friends fail/failed to understand the illness. It went as far to cause a rift in her family. How they treated her breaks my heart. They will never know the terribly sad days she had holed up in her apartment, alone, and abandoned. I stood with her on this making me an outcast as well. I help her where I can, but I am poor substitute for family.

Like you--she must fight for government aid just to survive. Every 6 months she must requalify--and usually, they kick her off the program. Then it's a terrible cycle of not affording medication that leads her to another health crisis. 

Like you--making ends meet is a difficult struggle.

Like you--it is hard to do the simplest task.

I am sorry to hear of your struggles. This is a terrible illness and it sounds like you have it bad. I totally understand nixing modeling. It CAN be and IS expensive for a person on a tight budget.

Hang in there my friend.  

Hey Bakster,

First, Thank you for your sympathy, it help a lot that people care for me. 

Second, Please let your friend know I stand with him and we are in this together.

Yes it has been a very difficult time since I got it 4 going on 5 years ago. It is very isolating, it is really hard for us and healthy people to conect and understand what is going on. I have struggled to conect with my family, only one who has it. But I can understand. It is such a difficult illness that when I try to explain it is super difficult. To put it in to context that people know, there is nothing really to compair. Also add the fact I have Fibromyligia, ME, and a whole host of other ailments. Forgot to post at the beginning. 

I have a really hard time paceing myself, i caught myself the other day.  With everything I have going on right now, government, legal, personal, health, cycling as main hobby, I don't think it is a very good time to start something new. Plus I'm on a fixed income so only so much money to go around.  Sure is funny, I can actually do some gravel cycling but hardly anything else. I can't understand it, it's the only thing I can do with any success.  But thats only 1-2 days out of the week and knocks me out for the day.  I have been thinking for a while now about doing some blogging to keep me busy through the winter months.  

 Thank you man!

Hey Don,

I can completely understand what it is like for you. Sure hope they fix your problem.  Stairs are not nice. Luckily where i'm living they have a ramp built on to the outside of my entrance which helps a lot. But to wash my clothes I have to go down to the basement and boy, climbing those stairs 4-5 times in one day is not nice. 

[quote user="sickdude"]

Hi All,

I was just wondering, do any modellers have CFS/ME? If you do, how do you cope? 

Why i am asking, I suffer with it daily and want to do a bit of modelling.

Thanks

[/quote I feel for you. I have a close friend that has struggled with the illness for a number of years. It is a difficult illness to live with, the illness isolates you. Your idea to model is a good one. Keeping your mind and body busy is a good idea and yeah, staying connected with people is really important. I hope you push through it and do so. It will help you.

I don't have CFS, but have had problems with blood pressure.  During a short hospital stay an intern gave me medication that caused a problem, hopefully reversable.  But in the meantime I can only walk about fifty feet, and climbing a flight of stairs completely wastes me.  But I can go down to my shop and sit and work on a model and it is great to get away from my problem.  Even if I know I will pay for it when I have to go back upstairs.

Hey PF. That's ok, even pro doctors have a extreamely hard time treating it. Yes 3 of my meds add to the problem, even though they are supposed to treat it.  Totally agree, i'm slowly ajusting to it. Yes that is the same thing for me. It can be very lonely being chronic ill, best to try and get as much interaction with people as possable.

Thanks man and gl.

Yes, I can fully understand. Even though never been married/kids. 

Hi,

I'm not sure that I can help with your specific problem either, though some of the medication that I am on does at times either leave me tired, and/or at times leaves me without alot of "motivation" to do much.

As such, sometimes I find that it can be helpful and not set unreal expectations to accomplish too much within a specific timeframe and sometimes just "take a bit of time off".  Other times though I have found that regularly interacting on these boards and/or talking with others sometimes helps "motivate" me to want to start doing suff again.

In particular, over the last year I kind of set me model building aside for awhile, but some recent group build have gotten me back into beuilding now.

Best of luck with your issues.

PF

No chronic fatigue here but I am generaly always tired: full time job, 2 kids...you got the picture. Modeling is my escape, I retreat to the basement and lock out the world for hour or so.