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An update on my condition

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  • Member since
    November 2009
  • From: SW Virginia
Posted by Gamera on Tuesday, October 25, 2016 12:19 PM

Greg

I think that great positive attitude of yours will help as much as the docs, Steve.

Keep it up.

 

Very true, a good attitude helps a lot! My prayers for you and your family Steve.

"I dream in fire but work in clay." -Arthur Machen

 

  • Member since
    May 2013
  • From: Indiana, USA
Posted by Greg on Tuesday, October 25, 2016 11:21 AM

I think that great positive attitude of yours will help as much as the docs, Steve.

Keep it up.

  • Member since
    September 2014
Posted by rooster513 on Tuesday, October 25, 2016 11:06 AM

That's good to hear Steve. Keep fighting buddy and I'll keep praying for you and your family.

-Andy

  • Member since
    July 2014
An update on my condition
Posted by modelcrazy on Tuesday, October 25, 2016 11:03 AM

Well guys just an update on my Idiopathic Pulmonary Fibrosis. I went to the Pulmonologist yesterday for my 6 month breathing test. The Dr. put me on oxygen for sleeping and if I am exerting myself, so I will be receiving that big R2 unit for my home and a small portable concentrator for stressful activity. I knew this time was coming so it’s not a surprise or shock. My numbers aren’t bad enough to be placed on a transplant list yet but he surmises that I may need to take a trip to Seattle sometime next year for that determination. What’s great is my boss didn’t even bat an eye at the news and he said he could help me with my occasional heavy work if needed.

The medication I was on was causing some really weird side effects so he is also prescribing me the other drug which is supposed to slow the progression. Although this drug requires a liver function test every couple of weeks at the start. I guess it messes with your blood.

So this is an update for those who may be curious of how I’m doing. For a disease that should have taken me out a few years ago, I’m doing great!

Steve

Steve

Building a kit from your stash is like cutting a head off a Hydra, two more take it's place.

 

 

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